Links

This section provides links to a wide variety of sites that young adult cancer survivors, supporters or those simply looking for information relating to young adult cancer may find helpful or interesting.

If you know of a great site relating to young adult cancer that isn’t in our list, we’d love to know about it. You can let us know by emailing us with the link at connect@youngadultcancer.ca.

 

Where you’ll find YACC

Screen shot 2014-06-10 at 7.53.42 AMFacebook.com/youngadultcancercanada    Screen shot 2014-06-10 at 7.53.56 AMTwitter.com/yacancercanada

Screen shot 2014-06-10 at 7.55.24 AMInstagram.com/yacancercanada             Screen shot 2014-06-10 at 7.54.30 AMYoutube.com/youngadultcancer

 

Cancer Blogs

100 Cancer Resolutions: Stephanie Sliekers writes about taking time to enjoy and indulge.

Anchor Of My Soul: Julia Bayer started blogging after being diagnosed with ovarian cancer at 26. She passed away in December 2016, but her husband, Andy, has continued to post about his grieving process and what he is doing to keep Julia’s legacy alive.

A Melanoma Journey: Sam is a “20-something year old Canadian who likes dogs, hiking and cross country skiing.” She was also diagnosed with stage 3 melanoma in February 2014.

Blue Butterfly: Nadia Hohn is sharing her experiences as she deals with Thyroid cancer. She makes playlists, writes candidly, and includes lots of pictures to keep it interesting.

Cancer Chose The Wrong Woman To F%$! With: A suggestion from a friend, a timely encounter with a 29-year old two-time cancer victim, and  Sexy Crazy Cancer Tips inspired Carolyn Van to write about cancer after being diagnosed in March 2014. “I’ve decided that I’m going to write out this journey — for me and for you. But mostly for me.”

Cancer Girl Smiles: Diagnosed with cancer five times by her early-thirties puts “Cancer Girl” in an extraordinary position. Sabrina writes about cancer and living with metastases.

Dancing With Dr. Hodge: Twenty-something Saskatchewanian Cheyenne Chartrand writes about living with Hodgkin’s Lymphoma.

Dear Thyroid: Written by and for thyroid (disease/cancer) patients, and their families. A place for everyone to share, learn, and grow.

The Diary of Nalie Agustin: Nalie says she “started blogging in 2013, when I was diagnosed with breast cancer at only 24 years old. Writing became my therapy, and as my stories began to inspire people around the world, it turned into my passion.”

Do I Have A Story For You: Katie offers “a little insight into facing choriocarcinoma.”

Dream Creator: This started out as a personal blog about my desire to move to Mexico, four entries in, I found my lump. Now I blog about being a 30-year old, mother of two, with breast cancer.

Full Of Grace: Cheryl writes about her experiences with follicular lymphoma, from coping with side effects to fertility preservation.

I think I will go for a walk: My journey learning a new normal with cancer, by Natalie Love.

Katie Over Cancer: Thirty-something “mother, attorney, athlete, sarcastic, and general bad ass” Katie blogs about “taking on cancer (and winning) one day at a time.”

Laydeewinxstudiolo: Samantha writes about life with GIST, as well as her other interests and curiosities.

Life changes in the blink of an eye: Jamie was 21 when she found out she had leukemia in July 2009. Her profile says, “Up until then I was an athletic, carefree young adult. I had played hockey since I was six and was very fit. My life literally changed in the blink of an eye that July evening.”

Life, Interrupted: Suleika Jaouad New York Times-hosted, Emmy Award-winning blog documenting her cancer experience.

Life to the Full: Living Life One Run, Bite, & Experience at a Time: A wonderful Blog from Bonnie Lang who is the supporter and wife of a survivor and also a personal trainer. Her blog talks about health, food, fun, and life.

The Lymphoma Lowdown: Robin says she is a “blessed nerd with a song in my heart.” She blogs about her experience as a 20-something Non-Hodgkin’s Lymphoma survivor in a real, and inspiring way.

My Unexpected Journey 2016: Kelly writes about being a 30-something mom of four with cancer.

One in Six Thousand: Chelsey has always been a writer, so after she was diagnosed with invasive ductal carcinoma on Halloween 2013, she decided to share her experiences in this great blog.

Pass Me Another Cupcake: Stephanie Gilman is a Toronto-based writer who blogs about having cancer in her twenties.

Positively Surviving Cancer: The author writes about being one half of a couple where both members have been diagnosed with cancer.

Roughing It In The Books: Melanie has three daughters, a husband, a list of reasons why she’s not ready to die yet, and stage 4 cancer.

Shannon’s Tool Box: Shannon’s “about page” says, “My journey has taught me that I am more resilient than I believed. The purpose for my blog is to share all the resources that I have found most helpful, and help people find tools to feel more in control of their life.”

Silverlupus: Life thru cancer and other hiccups: Julie Michaud is a Breast cancer survivor with a wicked sense of humour and a knack for telling it like it is.

Steffiellie: One girl’s thoughts on cancer and life.

Stomachs Are Overrated: Mallory blogs about life as a 20-something mom of three after being diagnosed with stomach cancer.

The Tidal Wave Leader: Cancer survivor David discusses strategies to help you get back on track after cancer.

Tumors and a tot: Learning how to be a new mom and a new cancer patient…one day at a time.

What? Cancer? But I’m A Pisces! Jody Mason writes about life as a thirtysomething with metastatic cancer.

When The Cookies Crumble: Marell says this is a cancer kid’s memoir on living with trauma induced anxiety and depression.

Young Adult Cancer Survivorship By Steve Pake: “By sharing fully and intimately in my cancer journey, I hope that it helps to make your own journey through cancer survivorship just a little bit easier, and that you feel a little less alone.”

2011: Don’t be afraid to jump: Follow your dreams and live in the moment. What else is there to do? Jen, a young and inspiring survivor shares her discoveries, lessons, and emotions about her journey in life.

 

Communities

A Fresh Chapter: We believe in empowering each other to think boldly, to take action even when it scares us, and to work together to tackle some of the most pressing social challenges in our world today.

Alli’s Journey: Alli’s Journey is a non-profit organization which raises funds for a network of support groups that provide critical care, counseling & assistance to young adults coping with cancer.

The Angels Anonymous Connection: A Canadian registered charity focused on fulfilling the dreams of terminally ill adults.

Breast Cancer Action Nova Scotia: Great Forums for those dealing with Breast Cancer.

Callanish Society: A small, grassroots non-profit organization in Vancouver, BC dedicated to improving the emotional and spiritual health of our communities by assisting families with cancer, and their health care providers, to explore illness and/or death openly and consciously. Weeklong retreats and ongoing support programs are offered by a team of health care professionals and volunteers who believe that communities can develop resilience in the face of illness and healing, loss and death, by coming together in a process of authentic dialogue and in an in-depth exploration of what it means to heal emotionally and spiritually while living with, or dying from, cancer.

Testicular Cancer Canada: A community-based organization dedicated to bring awareness and educating to the public about testicular cancer.

CancerChatCanada: CancerChatCanada offers free online support groups to survivors and their family and friends who are caring for persons with cancer to provide emotional support and a safe place to discuss personal topics. The groups are facilitated by a professional psychosocial oncology counselor and consist of six to eight participants. Discussions focus on common experiences, concerns, and questions and members are encouraged to speak openly and to support each other.

Cancer Fight Club: They connect people, resources, and support services in the Canadian community to help “Fight the Fright” of young adult (AYA) cancer.

Cancer View Canada: connects Canadians to online services, information and resources for cancer control. It is an ever-evolving portal that brings together resources for cancer prevention, screening, treatment, and supportive, palliative and end-of-life care; specifically it includes a database of support services and clinical trials, among other resources.

Cancer Wise: A monthly online magazine which features articles and interviews about all kinds of Cancer.

CanSupport/Faire Face: Cedars CanSupport was founded in 1988 with the mission to provide cancer patients and their families with practical, educational, emotional and humanitarian support.Our team of professional staff and trained volunteers, many of whom are cancer survivors, are here for you at each step along your cancer journey. Our programs and services are free-of-charge and easily accessible through our Resource Centres at the Royal Victoria and Montreal General Hospitals.

CanTeen: CanTeen is an Australian Organisation for Young People Living with Cancer (aged 12-24). CanTeen’s mission is to support, develop and empower young people living with cancer.

Cleaning For A Reason: Their website says “our mission is to give the gift of free house cleaning to women undergoing treatment for any type of cancer. Our goal is to let these brave and strong women focus on their health and treatment while we focus on, and take away the worry and work of, cleaning their homes — free of charge.”

ELLICSR: ELLICSR is designed as a collaborative space for research into health, wellness and cancer survivorship. They strive to better understand the cancer and survivorship experience in order to improve it.

Fondation Sur la pointe des pieds: Fondation Sur la pointe des pieds/On the Tip of the Toes Foundation helps young people living with cancer regain their well-being by facing the challenge of an exceptional therapeutic adventure expedition.

Generation Why: The Huffington Post’s hub of young adult cancer content, from recurring survivor blogs, to what’s new in the medical world.

Gilda’s Club: An emotional and social support community for people living with cancer. Non-profit clubs exist throughout North America.

Hope & Cope: Hope & Cope helps people cope with cancer. Guided by professional staff, cancer-experienced volunteers provide psychosocial support and practical resources that help patients regain a sense of control and well-being, reduce isolation and restore hope. Easily accessible and open to all, Hope & Cope is funded by the community and is located at the Jewish General Hospital’s Segal Cancer Centre and the JGH Hope & Cope Wellness Centre in Montreal, QC.

Imerman Angels: A not-for-profit organization that provides One-on-One Cancer Support: Connecting Cancer Fighters, Survivors and Caregivers.

Inspire Health: InspireHealth is a not-for-profit society in British Columbia that provides an integrated cancer care program for people with cancer and their families.

Instapeer: Stupid Cancer’s app to help you connect to a community of young adult cancer survivors and patients.

Lacuna Loft: Lacuna Loft is an online magazine geared towards young adults dealing with cancer or long term illness (as patients or as caregivers).

The Leukemia & Lymphoma Society of Canada: LLSC is a voluntary health agency dedicated to blood cancer.

Life With Cancer: Can help you meet the challenges of living with cancer by providing you and your loved ones with education, information and support, free of charge, no matter where you live or receive treatment. Explore the many ways that Life with Cancer can make your day-to-day life easier and help you connect with a community of people who face many of the same challenges you do.

LIVESTRONG: Advice, stories and articles for Cancer survivors.

Look Good Feel Better: Their website says “Look Good Feel Better was created from a belief that if a woman with cancer can be helped to look good, chances are she’ll feel better, her spirits will be lifted and she’ll be empowered to face her illness with greater confidence.”

Lymphoma Canada: Lymphoma Canada empowers lymphoma patients and the lymphoma community through education, support, and research.

Lymphoma Info: A website featuring information on many aspects related with dealing with Lymphoma.

Nanny Angel Network: This volunteer organization provides safe, qualified nannies for up to five hours a week so mothers can attend appointments and/or find some time to relax, heal, and regroup.

Now What: is a website for young people living with cancer, those who have a sibling, parent or friend with cancer, or whose sibling, parent or friend has died from cancer.

Oxford York Cancer Centre: The Oxford York Cancer Centre (OYCC) helps young adults dealing with cancer between the ages of 18-39, and their supporters, in the Montreal area.

Pink Pearl: “Pink Pearl is a not-for-profit organization that brings together young women who have been affected by cancer through a network of peer-support and innovative programs.”

Planet Cancer: Tips, humor and a great forum.

Radioactive Runner: Sabrina says she is “a runner, a wife, a stepmother and a cancer survivor. Hablo español and parlo italiano. I run hard, eat well, and I am trying to live better everyday because we only have one chance at this adventure called life.” Check out her blog to follow her story and get some great tips on staying healthy along the way!

Rethink Breast Cancer: Launched in 2001, Rethink Breast Cancer is a national charity focused on research, education and support for young women in their 20s, 30s and 40s that are living with and recovering from breast cancer. Rethink provides savvy support programs that respond to young women’s unique needs.

Sharsheret: A National not-for-profit organization (USA) of cancer survivors dedicated to addressing the unique challenges facing young Jewish woman living with breast cancer.

The Social: The Social aims to provide a special place to socialize with peers who understand what it’s like to have cancer between 13-18.

Stupid Cancer: A site that is dedicated to connecting adolescents and young adults with cancer with trusted and credible cancer survivorship information, human resources and psychosocial support services.

Team Shan: Team Shan was named for Shanna (Shan) Larsen who was only 24 when she lost her life to breast cancer.  Team Shan is committed to raising awareness about breast cancer and young women.

Teens Living With Cancer: A website with info, articles and a forum for both patients and supporters.

The Stupid Cancer Show!: Listen to Stupid Cancer’s Stupid Cancer Show – Finally giving a voice to young adults affected by cancer.

Thyroid Cancer Canada: Whether you have just been diagnosed with thyroid cancer, have been living with it for years, or are a family member or friend of someone with the disease, this site will be helpful. Contact Rita Banach at (416) 487-8267 or rbanach@thyroidcancercanada.org if you have any further questions.

Vital Options: Vital Options: Support For Young Adults With Cancer, a resource for this special patient population.

Wellspring: Wellspring is a network of community-based centres that offer programs providing support, coping skills, and education to cancer patients and their families.

Willow: Willow Breast and Hereditary Cancer Support (Willow), founded in 1994, is a national not-for-profit organization that provides free support and information to anyone affected by breast cancer.

 

Online films and documentaries

Chasing Rainbows: Young Adults Living With Cancer: This upbeat documentary film Chasing Rainbows: Young Adults Living With Cancer, is a dynamic, intimate portrayal of six young people who are “living life while fighting for it.”

I’m Still Here: Young Adult Living Life with Recurrent CancerI’m Still Here is a 45-minute film documenting the authentic voices of young adult participants on a three-day Callanish retreat, supported by a team of compassionate professionals who guide them through a healing process.

Valleys: The story of how Amy Aubin and her friends and family deal with her cancer. This webseries was shot by the same team that made Wrong Way To Hope, and juxtaposes Amy’s cancer journey with her best friend, Annie’s, experience on  a rafting trip through the Grand Canyon together as they discover important truths about living with cancer.

 

Conferences/Retreats

Alive2Thrive: Transformational healing retreats for young adults facing cancer.

Camp Mak-A-Dream: Camp Mak-A-Dream is a medically-supervised, cost free experience for children and young adults with cancer and are a blend of education and recreation.

Cottage Dreams: This org works with those who own cottages and those who would like to use one post-cancer to offer much needed R & R.

First Descents: First Descents is a free, seven-day kayak camp for young adults with cancer.

On The Tip Of The Toes: On The Tip Of The Toes helps young people living with cancer regain their well-being by facing the challenge of an exceptional therapeutic adventure expedition.

Survive & Thrive Adventures Inc.: A Canadian organization whose mission is to help young adult survivors of severe illness or injury identify, process and apply life lessons through adventure activities.

 

Resources

Advance Care Plan tool-kit: This resource from Dying With Dignity has templates designed to leave behind your wishes to alleviate the guess work for your family.

Canadian Crisis Centres: A list of crisis centres, organized by province.

Cancer Coaching (Ottawa Regional Cancer Foundation): A complimentary health and social care service offered to cancer patients and their support networks. Cancer Coaches are regulated healthcare and wellness professionals with a background in oncology. Group and individual sessions focus on you, who you are, and what matters most to you and provide you with education, support and practical skills development to help meet your physical, emotional, informational and spiritual needs.

Cancer Council New South Wales webinars: Great resources for those diagnosed with cancer and their caregivers.

Cottage Dreams: This organization helps “families touched by cancer reconnect and rejuvenate at a private, donated cottage.”

Scholarships and bursaries for AYA cancer survivors: This list says “Manitoba,” but a lot of the options are for all Canadians.

 

Medical/Technical Information

Canadian Blood Services: Information on donating blood products.

Canadian Virtual Hospice: The Canadian Virtual Hospice provides support and personalized information about palliative and end-of-life care to patients, family members, health care providers, researchers and educators.

The Cancer Blog: Covering cancer diagnosis, treatment and prevention.

Chemo Care: The latest chemo information for cancer patients and their families, caregivers and friends.

Cancer Knowledge Network: A site featuring oncology articles and information.

Fertile Future: Provides fertility preservation information and support services to Canadian cancer patients and their families who are facing fertility-risking medical treatment, as well as oncology professionals.

Fertile HOPE: Information for cancer patients faced with infertility.

McGill AYA Oncology Program: a program for patients 18-39 years of age; providing access to necessary health-care professionals and services to meet their unique needs. Patients are from Montreal and surrounding regions of Quebec.

Mesothelioma.com: This site provides info on recognizing, diagnosing, and dealing with mesothelioma.

MyOncofertility.org: Contains expert videos and survivors stories and informs patients about the potential effect of cancer treatments on their fertility and their options to preserve it.

My Cancer Advisor: Dr. Charles M. Balch is an internationally recognized surgeon and oncologist with over 34 years of clinical and academic experience and a leading authority in melanoma and breast cancer. MyCancerAdvisor.com is the inspired creation of Dr. Balch. His vision is to create the premier cancer blog for unique insights from leading experts so that visitors will be empowered to better understand and confront this disease.

OneMatch Stem Cell & Marrow Network: Information on becomming a bone marrow donor.

Online Cancer Guide: Designed to be a valuable tool for patients and members of the public who are seeking dependable information related to cancer, treatments and services.

Patient Resource: On this site, you will find patient focused information. We have worked to bring you many encouraging stories of survival.  Be sure to review them as you progress on your journey (mainly USA).

Steve Dunn’s Cancer Guide: A comprehensive guide to cancer.

Survivorship Guidelines – CureSearch : Long-term follow-up guidelines for survivors of childhood, adolescent and young adult cancers.

 

Are you dealing with your parent’s cancer?

riprap: A British website with articles, profiles, and support information for teens whose parents have Cancer.

Ottawa Regional Cancer Foundation: Children of those affected by cancer can attend six-week programs to help them deal with their feelings and gain access to tools which will help them cope. There are groups for those aged 6-15, and 16-23.