That is the question of the day, and I’m not sure of the answer. Today, for reasons I am unsure of, I am playing ’silent puppy’ and not speaking very much. I feel fairly well despite the fact that I haven’t been sleeping very well at all, but I seem to be in a little shell.
As I said I haven’t been sleeping very well, but I am actually feeling well, about as well as I have in the past 6-8 months. My energy seems to be increasing and is higher on average for longer periods of time, being back on the Prednisone has made a big difference. I feel about as well as I did after returning home from Toronto, except now I have different areas that cause me pain or discomfort and different activities tire me in different ways.
As the Superbowl weekend approaches I have been thinking back to last year’s game, which I watched part of at a buddies house with about 6 other guys. This was just after I had gotten out of hospital and spent 17 days fighting a fungal infection, you may remember my stories of ‘amphoterrible’. In times like those, during and after chemo, I was really low on energy and just being in the presence of people really took the good out of me. I remember being in hospital and having to ask people to leave as I could only tolerate having one or two people in the room at a time. Fortunately those times didn’t last for months and usually within a matter of a week or two I could build up sufficient strength and stamina to be around larger groups of people. Well my fatigue seems to have switched forms and while I have more energy than in those times it seems to take me longer to recover. It reminds me of a rechargeable battery that may last for an extra couple of hours but it also takes many more hours to charge. And with respect to the differences in my fatigue, my mind seems to have much more stamina lately, and the body especially my abs and back, don’t have near the endurance.
I am in a position where I could probably spend all day talking with someone, but to have to get ‘cleaned up’ and go out takes a lot out of the battery. While I do get ‘cleaned up’ every day it is getting easier and in a way I guess it serves as exercise for me right now. And exercising is something I have been doing more of, specifically stretching and lifting some weights. I’m not quite ready to rollerblade up Signal Hill yet, but in time. My mental goals are ‘work-in-progress’ and I will be sending out questions for comment sometime soon.
Take care,
Geoff
#4
